There are two blogs that I have been thinking of writing for a while. This is one of them.
What do you say to a person you love and have lived with for over three decades when they turn to you and say with tears in their eyes, "I don't want to die"?
What do you do when you have kids and family members that just ask "How is she doing?" and just want to hear "Fine", or "About the same"; even if it is not true?
How do you make people understand that you are living with it every day and that it is not going away and that it is hard? Hard for those of us around her, but even harder for her.
How can you watch your wife of thirty-four plus years not able to get out of bed or up a single step unassisted when you still see her as the eighteen year old you married?
How do you answer a 53 year old that asks you if she will see her daughter, a junior, graduate from high school?
How do you get your kids to get off their asses and recognize their mother needs them? (with one exception, Steph) Not later, NOW!
How do you respond to a social security ruling that denies disability so your insurance is going up to more than your rent every month? How do you deal with insurance and government people that are on a timetable that is slower than a glacier?
What do you do to help when you have seen, in eleven months, a progression from walking slowly, to walking with a cane, to a rollator/walker sometimes - cane sometimes, to a rollator / walker all the time, to a wheelchair sometimes?
How do you convince someone to go out when every movement is a tremendous effort and one of your biggest fears is seeing someone you know or used to work with?
What do you do when you are a control freak and things are out of your control, no matter how hard you try?
I do NOT want any sympathy for me. I am not going to say I am not human. I am not going to say this was not a release for me. But comments on my condition are irrelevant. Sympathy, compassion, concern, and love for my wife is demanded. She needs all of you.
Questions need answering. I don't have the answers.
Here is another thing that is bothering me - I am tired of people whining about gas prices. Gas was never free!! When people whine about "$40 to fill my tank" they forget that even at $2 a gallon it was $25 or so to fill it!! Here are some numbers: The average car in the U.S. is driven about 12,000 miles a year. If you get 20 MPG (hey if you are driving a Hummer, getting 10, I don't want to hear it!) That is 600 gallons of gas a year. Most people would be estatic if gas was at $2 a gallon again -SO, that is about $600 a year (for the extra $1 a gallon) or $11.54 a week. Now I know there are a LOT of folks that were struggling to pay the $2, but the average person I know was not. Here is another way to look at it. How many Starbuck's coffees or lattes have you had lately at $$37.33 a gallon? ($3.50 for a 12 oz one) How about a beer on an airplane at $53.33 a gallon? ($5 per) Then there is bottled water at $10.66 a gallon. ($1 a 12oz bottle -and it can be MUCH higher
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