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It is also available as a book with added comments and thoughts. It is a fundraiser for Multiple System Atrophy research - the disease that killed my wife and the catalyst for the blog. Please consider buying either a Kindle version from the Kindle store or a paperback version from Amazon. The title is "Living With A Snowman" by Scott Poole. It is available for purchase HERE.

Saturday, February 13, 2010

Rare Disease Day 2010

Rare Disease Day 2010 is coming up - February 28th, 2010. Contact any and all government officials and legislators you can, as well as any other people you know. There are over 25 million persons with a Rare Disease - one that affects less than 200,000 people. In most cases this is too small a population to support research or treatment development. However, with over 100 diseases in this classification there are a LOT of individuals and families dealing with these maladies. You can go to for more information. Your thoughts and support are needed and welcomed.

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